Hoy, 12 de mayo es el día mundial de la fibromialgia, enfermedad autoinmune que afecta aproximadamente al 6,3% de la población mundial, en su mayoría mujeres.

¿Feliz día? Ironía, aceptación, reciclaje emocional, lo que sea. ¡Si! Hoy decido decir «felíz día». Y voy a compartir contigo por qué puedo decir feliz día en el día mundial de la fibromialgia.

Tengo fibromialgia. Me diagnosticaron la enfermedad a comienzos del año 2016. Fué un alivio saber que lo que me aquejaba hacía tantos años tenía un nombre, pero a la vez fué difícil aceptar las contradicciones de la enfermedad. En palabras del médico, «Ve lo positivo: Nadie se cura, pero nadie muere de esto».

¡Genial! ¿Río o lloro? No me queda claro.

Y desde entonces hasta ahora me he dado cuenta de varias cosas:

  • La mayoría de los médicos no tienen idea de cómo tratar la enfermedad. Muchos ni siquiera la aceptan como tal.
  • Los verdaderos expertos son los pacientes.
  • Los tratamientos farmacológicos suelen empeorar las cosas.
  • No hay nada mejor que un cambio completo del estilo de vida para experimentar resultados positivos.
  • Esta enfermedad es una tremenda escuela.

Y aquí es donde quiero detenerme, en esta escuela llamada FIBROMIALGIA. Una dura escuela que me ha dejado grandes lecciones que sin duda no hubiera aprendido con una salud plena libre de dolor y cansancio crónicos.

  • Aprendí a conocerme, a ser consciente de mis propios ritmos personales.
  • Aprendí a ser consciente de mis limitaciones y mis necesidades particulares.
  • Aprendí a decir que no. Que no puedo o que no quiero, sin dar explicaciones y sin culpas.
  • Aprendí a quererme así, con mis vulnerabilidades.
  • Aprendí que no soy «la mujer maravilla», no puedo estar bien siempre, ni siempre fuerte, ni tener todas las soluciones. Y está bien que así sea.
  • Aprendí a decir: «Necesito un abrazo».
  • Aprendí a mimarme y dejarme mimar cuando nada más me alivia.
  • Aprendí a pasar por alto y perdonar comentarios sinceros pero crueles de personas que no entienden que se puede lucir espléndida y estar toda quebrada por dentro.
  • Aprendí que nadie va a cuidarme mejor que yo misma. Nadie.
  • Aprendí a llorar con ganas, dejar que esas lágrimas se lleven mi dolor.
  • Aprendí a no victimizarme. Esta es solo una enfermedad más.
  • Aprendí a seguir luchando, seguir sirviendo, seguir aportando lo que pueda desde mis limitaciones.

¿Sabes? si pudiera elegir, no elegiría vivir con dolor y cansancio crónicos. Pero agradezco esta escuela que me ha enseñado tanto. Porque lo que no mata, (y esto definitivamente no mata) te fortalece

Feliz día a todas las personas que como yo son alumnos de esta escuela.

«Porque yo te devolveré la salud, y te sanaré de tus heridas,

declara el SEÑOR».

Jeremías 30: 17


Lore Burgos

Mi nombre es Lidia Lorena Burgos. Soy Licenciada en Psicología General. De nacionalidad argentina. Felizmente casada hace 26 años y madre de 4 hijas maravillosas de 26, 22, 18 y 14 años. Actualmente resido en la Provincia de Neuquén, Argentina. Me apasiona escribir artículos, trabajar en radio, y brindar charlas educativas a la comunidad en mi área. Mi motivación es el servicio y mi lema "Todo lo puedo en Cristo que me fortalece". Filipenses 4: 13

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